Gov. Tom Wolf and Department of Drug and Alcohol Programs Secretary Jennifer Smith announced the launch of Life Unites Us – an evidence-based approach to stigma reduction of substance use disorders, specifically opioid use disorder. This was done in partnership with Penn State University’s Douglas W. Pollock Center for Addiction Outreach and Research, public health nonprofit The Public Good Projects, and national nonprofit Shatterproof.
The statewide campaign is funded by $1.9 million in federal grant funding as part of the Department of Drug and Alcohol Program’s 2019-2022 Strategic Plan goal of reducing stigma of substance use disorder.
“We want every Pennsylvanian struggling with substance use disorder to know that they are valued, that they are loved, and that they deserve treatment,” Wolf said. “The Life Unites Us campaign will help to save lives by decreasing stigma in the commonwealth, and it will remind us all that every person is greater than the diseases that afflict them, and that we are all stronger when we support one another.
“It is important that we continue to direct resources into ending the opioid epidemic here in Pennsylvania and not let our attention be swayed from that goal by the overwhelming nature of the current pandemic.”
“For decades stigma has cast a shadow over people battling substance use disorder and their families,” said Smith. “That must change. The Wolf Administration is thrilled to be the first state in the country to address SUD stigma with an evidence-based method that has proven results. We look forward to these continued partnerships and creating meaningful impact for Pennsylvanians living with substance use disorder.”
Life Unites Us will utilize social media platforms to spread real-life stories of individuals and their family members battling SUD, live and recorded webinars detailing tools and information necessary to effectively reduce stigma to more than 350 community-based organizations focused on SUD prevention, treatment and recovery throughout Pennsylvania, and a web-based interactive data dashboard detailing the progress of the campaign.
“Stigma keeps people from seeking treatment and staying in treatment,” said Joe Smyser, PhD, MSPH, chief executive officer of PGP. “It prevents communities from effectively addressing the opioid epidemic because it creates a false narrative about addiction. This isn’t about ‘addicts.’ It’s about family, friends, neighbors and coworkers. “Real people with real lived experiences from all walks of life and all parts of the state are behind this effort. Our role is to help give them a platform, and work behind the scenes to ensure their messages reach everyone, and by supporting community organizations who, in many cases, have been engaged in this work for years.”
Life Unites Us was developed based on the results of mixed methods behavioral health research and modeled after a successful mental health stigma reduction campaign led by PGP that used a collective impact approach. The project saw a reduction in stigma by 8 percentage points, equating to 7 million people holding less stigmatizing views toward those living with mental health conditions. Based on the success and lessons learned of the mental health campaign, Life Unites Us will be rigorously evaluated throughout the campaign.
“In the past, stigma reduction projects have often solely focused on sharing stories and while this campaign will share stories, it is much more involved than that,” said Weston Kensinger, PhD, CHES, Center for Addiction Outreach and Research director. “It’s an innovative, research driven behavior change campaign aimed at celebrating recovery stories to empower individuals but also educating policy makers and medical professionals treating patients with SUD while advocating for harm-reduction strategies with proven outcomes.”
Some baseline statistics from the campaign’s initial survey include:
– 60 percent of respondents reported having a family member or close friend having SUD; when asked specifically about OUD, 42 percent reported having a family member or close friend having an OUD
– 92 percent of respondents agreed that prescription opioids can be a problem for anyone; 56 percent agreed that OUD is a medical illness like diabetes, arthritis or heart disease
– Approximately 50 percent of respondents agreed that most employers would not hire a person in recovery; almost 60 percent of respondents believed that most employers would not interview an applicant that had been arrested for OUD
Life Unites Us is part of Shatterproof’s recently announced strategy to end addiction stigma across the nation – The Movement to End Addiction Stigma. The strategy identified nine commonly-cited drivers of the opioid epidemic, seven of which are either partially or entirely driven by stigma. Additionally, the strategy addresses four key areas of stigma including public stigma, structural stigma, self-stigma and stigma against medications for treatment. Pennsylvania is the first state in the country to participate in the strategic plan.
“Ending addiction stigma means saving lives and the Commonwealth of Pennsylvania is a leader in this country through its commitment to have open, honest discussions and evidence-based content that tell the true stories about this treatable disease,” said Gary Mendell, founder and CEO of Shatterproof. “We applaud Governor Wolf and his staff, The Douglas W. Pollock Center for Addiction Outreach and Research at Penn State Harrisburg, and the Public Good Projects for their support of the National Movement to End Addiction Stigma and collaboration to bring the stories of real people throughout Pennsylvania to the forefront to end addiction stigma.”